PORT NECHES, Texas — A 9-year-old Port Neches girl is defying the odds and keeping hope alive as she battles a rare genetic condition with no known cure. Isla Edwards was diagnosed with CLN3 Batten ...
PORT NECHES, Texas — A U.S. congressman is supporting a Port Neches mother, whose 9-year-old daughter is battling a rare genetic disorder, as she demands change from the FDA. Isla Edwards was ...
Isla Edwards was just 7 years old when a routine eye exam determined she has a rare, incurable disease that can lead to early onset dementia. The Texas girl, now 10, went to the doctor in 2021 to ...